The Palmetto State

The Palmetto State

Friday, August 2, 2019

The evening of August 2nd...


She's All loaded up for transport captian!


Wow.. When i finished writing this afternoon i thought i was in for a quiet evening. I was wrong.  After i got off work at 5, I received a text from my buddy Alex.  he said he could come pick up my Purple Camaro today, to be worked on, so that we can get it to be a dependable car.  I've been having Alex work on the car off and on here in my Garage over the past year, year and a half, and since my house's garage is so small it was time to take the car to his shop to get it finished up.  So you know when he called I was super ready for him to get it, and Emily helped me move the cars around, and then empty out the Camaro of any parts or tool that weren't necessary in it in preparation For Alex to come pick her up.  Alex and Tommy showed up with a beautiful rig and trailer, and before you knew it, we had the car loaded up and on the way to his garage.  All that was left was for me and Emily to move the Cavalier from the front yard to into the garage where the purple car once sat. 

Alex Goofing while tying down Purple to the Trailer.
The Rat/king snake that offended Emily


So at this time I get into the Cavalier, and start backing her out of the yard, line her up to back into the garage, and Emily who's guiding me tarts freaking out saying something on the front bumper is moving, and she thinks its a snake!!!  So i pull forward 3/4 the way up the drive way and sure enough this foot and a half long corn or king snake falls out from the front end area onto the driveway.  this freak Emily out of course, she throws me the broom when asked to, and shuts the garage door.  then comes out front with me, and goes and gets our neighbor Chris.  I was going to just sweep him into the gras/bushes, since i didn't think he was poisonous i was just gonna scare him off.  Well, luckily Chris and his father were there for Emily's peace of mind, and they caught the snake, and carried it bare handed to the new phase of our neighborhood and released it. After all that, I was able to back the Cavalier into the garage safely.  Emily popped the hood, and brought in the cover from outside where she had rolled it up.  We then closed up the house, and went to her car, and drove over to Alex's shop, which isn't far from the house, in fact, its about 3 miles away, near Nazareth Church road. 
After the short ride, she's unloaded. 

Once we had got to Alex's shop, we unloaded the car from the trailer, and then put her into the empty bay with the pit.  that way working from below wont be so bad.  Theres quite a bit to be done to the car, to get it in a semi reliable manner, but I have full confidence in Alex, this is child's play compared to him rebuilding an entire C10 truck and swapping frames, LS motors, transmissions, and everything else he's done before.  I don't have much money, but He's going to work with me on it so I'm thankful that he will.  I hope he knows how much this means to me, as with me having cancer now, i tend to feel my own mortality more, and it will be awesome to be able to drive the car again, and remember happier times when Emily and i were just dating, as opposed to now with me having cancer, and not knowing what the future holds or how long it may hold me.  I'm forever thankful to him for helping me like this, it truly mean the world to me. 

New temporary Home over "the pit"
Ready to be worked upon straddling the Pit. 

After she was pushed into place over the pit as seen above, we were pretty much done for the night. I spoke with Alex a bit about what needs to be done, and we decided that I'd make a list of things and send it to him via facebook messenger.  I've got the list here as to what we need to address, now keep in mind this is just a tentative list that gives us general direction on what to start with: 

1 Gas Gauge reading incorrectly.Drop tank and correct.
2 Starter rebuild? Pull starter test, and rebuild if necessary.
3 Grounds to chassis, frame, body, engine
4 Grounds to battery to chassis frame and engine and body
5 Setup front mounted battery. 
6 Check electrical wiring for dash wiring. Heater blower etc.
7 Check radio wiring/fuses/console wiring/fuses for melting wiring.
8 check all dash wiring for ac/heat control to ensure no shorts. 
9 Oil, Coolant, and any other fluid changes that are necessary
10 Tune Carb.
11 Adjust valves, and timing.
12 Ensure electric fans both work, switched fan in console doesn’t last checked.
13 Ensure car starts and shuts off easily each time key turned. 
14 ensure car runs cool, and does not overheat at idle/in traffic/while driving. 
15 Clean engine bay / engine. Make sure shiny is shiny. :) 
16 Change back tires to the two new tires mount and balance. 
17 remove door panels, PB Blast Door poppers, and lubricate and ensure function properly 
                for both doors.

And thats it for now, unless i think of things.  we'll see.  I have complete faith in alex, and know he can get it done without much issue.  With that, ill be signing off now for the day.  4 minutes before the 3rd of august. lol.

August 2, 2019

I honestly cannot believe that today is August 2, 2019.  Time is truly flying faster than I can account for.  I get up each day during the week, go downstairs to my couch, sit down, pull out my lap desk, pickup my work laptop, and mouse and put both on the lap desk.  Each day this happens no later than 720 am usually, if not earlier. I then connect to my VPN, setup my remote sessions into my service desk software applications, pull up my Accounts email account, and begin working.  I manage 2 different software packages for work orders that may be called in each day.  It's my job to sort the work orders, and then delegate them to their proper teams that must be tasked with working on the problems.  I monitor and manage these until 5 pm each day, getting up to use the restroom, get my lunch, which i usually will eat while logged in working.

This would be fine and all, except since I've been back on the maintenance chemo, (which started this past Monday) I've had an increase in my appetite, and a definite increase in my fatigue. I'm so sleepy now its not funny.  I slept a long time last night, from like 10 pm until 7 am, but i still find myself very tired.  to the point of dozing off even at times.  I'm hoping that as my body gets more acclimated to being on the chemo, i'll start to balance out and not be as fatigued and my appetite will return to normal.  I enjoy being a lot thinner now than I used to be, so I do not want to gain a bunch of weight.

I've just received a call stating that some of the lower receivers that I had ordered from PSA have came in, and that i can pick them up at my leisure.  These are specialty "meme" lowers, with special roll mark engravings.  I would probably not build them into full AR's, rather just keep them as a collection piece due to the low number produced of each.  PSA has been producing a lot of these Meme lowers, too many for me to have even one of each really.  there is some i just *Have* to have. and that is a  small number compared to how many different designs they have produced and plan to produce.  One of these lower designs is the F' Cancer lower.  It was designed to express hatred for Cancer in general, and as a popular saying of F*ck Cancer. cause that's what we have got to say and do to it.  The lowers look like this :

While these lowers were being developed on AR15.com (more commonly known as Arfcom) Someone had suggested some proceeds of the lowers sale go to fighting cancer.  Then someone suggested that the proceeds go to someone close to the PSA family, as in a overly rabid fan of their products, Me.  I was shocked and incredibly honored.  I didn't know what to say to it other than thank you.  So they have said that a small amount of each lower will be donated to me to help pay for my bills. This was incredible news, and just made me feel over the moon for the company, and its folks who run it.  I can't speak enough about how honorable and kind PSA as a company has been to me.  It truly has humbled me to be on the receiving end of so much kindness from them, not to mention other folks on Arfcom. 



Lately I've been watching via netflix the Vampire Diaries series.  I had tried to watch this show series when it first aired, but I had so much other stuff being recorded, i couldn't DVR it as well as my other shows due to time slot conflicts.  Anyways, I like paranormal, sci-fi, fantasy, etc, so this seemed to be right up  my alley after a friend of mine reminded me of the series a few weeks ago.  Since then I've watched almost 7 out of 8 complete seasons.  I've learned that in addition to this series, there are two spin off series, one called "the Originals" and another called "Legacies"  the first i imagine to be a prequel of sorts, and the latter a sequel of sorts.   Things I like about the series are the lore of the vampire history, the lore of the witches, the lore of the ware wolfs, and how it all became reality in the series.  It to me is a better take on vampires than the twilight series of sparkling vamps.  Things I do not like is the standard teenage angst/b.s. drama that they had to write in for love stories and all that.  it appears that was the target audience, being early to late high school kids and thus probably why there is that much written into its scripts.  The cast is pretty good, and the acting is not horrible, the special effects are not bad either so it saves the series from being "b-movie" campyness. Anyways, it fills the TV time for me for now.   



I finally was able to watch Avengers:EndGame, thanks to my brother Bobbie.  he hooked me up with his copy of it, and man is it good.  Quite a tear jerker actually.  After so many years, and so many movies, i'd become quite attached to the characters and man it rally hits ya hard when you loose some of the major ones after 2 decades of movies, and almost as long from back when i used to collect comic books.  I cant wait to see what they are going to do with the next phase of the MCU. Now that Disney owns all of Marvel, including the X-Men and the Fantastic Four.  It should be interesting either way now that it is all joined together as well.

Well I think I've rambled on enough for now, I'll try to write again soon. it's never easy to put my thoughts into words like this.  Heck its taken me 7 hours to do this much off and on today. ..

Thanks again for your prayers and support.
Steve's Go-Fund-Me.(click here)

Tuesday, July 30, 2019

July 29, 2019


"Today 7/29/19 is Day 1 of the 21 day cycle of my maintenance chemo. The drug is administered in a capsule form, and i have to take it once a day for 21 days, then i have 8 days off, and then it starts all over again. While its a good thing, overall, the maintenance chemo is to keep my Multiple Myeloma at bay. It is supposed to help keep my numbers down, or going down. At this point, It's only making me feel a bit fatigued, and i hope that's all the side effects i experience. being nauseated is to me one of the worse things that Chemo does to oneself, and if this can skip that stage i'd be forever grateful. The loss of appetite that comes along with the Nausea is sometimes welcome for losing weight at least lol. Last Friday, i had an infusion i had to go to. This was a bone strengthener infusion of medication. I got it done in I wanna say 2 -3 hours. basically its an IV drip and once that medication is in i don't have to have another for another three months. My next follow up appointment however is next week i'm sure. Every other week i have follow up appointments with my local oncologist team. my Charleston transplant team only wants to see me again every other month or so, so right now i'm in the clear from any long distance commuting for a while as long as my numbers stay good and that things don't get worse on my end. Please continue with the prayers and support as I need all of it i can get to continue the fight. I cannot thank you all enough for the support you've given me, without y'all's prayers i'd truly be lost. Thank you so much again." ~ Steve H. 



July 30, 2019


Alright, well now you're all caught up with everything that's been going on in my personal life regarding my healthcare, and my cancer treatment. I'm hoping that my numbers will continue to go down, as i proceed to take this maintenance chemo.  So far, even though i'm only 2 days into it, i feel very fatigued, not just tired to say, but like, for lack of better word, heavy. the whole body to lift an arm, or leg, just feels heavy.

As for the rest of life, there has been a ton of things going on in it, aside from my Cancer. My youngest sibling for instance, has had to have open heart surgery at the young age of 25 while i was in the hospital in Charleston SC she was in one in Baltimore MD.  Luckily, now, she's healing well on the up and up, has gotten a good job, and has started to put her life back together. 


I've returned to work, from home that is.  I remote into work from my laptop, and work on work orders from home.  I'd love to go into work, but by the time im up, dressed, and drive into work, get to the office, and setup, i'm pretty much wiped out of energy.  Not to mention the intense pain in my back that i have when i sit in the wrong position or chair for too long. I truly hope that my back gets resolved soon so that i can live somewhat of a normal life again, especially since we've been able to beat this cancer down like we have so far.  

I'm going to try, and yes I know i always say this, but try to post more often here, and keep this up to date.  I do feel that being able to post about my life here is helpful, so perhaps by posting more frequently it'll be more beneficial for my mental health. .. anyways, if you've read all i've posted up in the past day, then kudos to you, and stay tuned!  

2018, through July 29th, 2019. This is a basic recap,.....



So it's been over two years since I've posted last to my blog here. I apologize for the delays for posting. I've had a lot going on, very little energy to do much of anything until the last few months.  I'm slowly getting back to some form of normal, if I will ever be able to get to that again.  I say that, because I've had some major Medical issues that have arisen in the past year and a half to two years since my last post.

Basically, last May, 2018, I was finally properly diagnosed on what was ailing me.  Unfortunately, what that is happens to be something that will stay with me the rest of my life. However long or short it is.  I have been diagnosed with Multiple Myeloma Cancer.  For the long and short of the story, I'm going to copy and paste the story, and my updates from my go-fund me campaign page.  I'll also Include links here to both my Facebook fundraiser as well as my go-fund me page. I apologize in advance for my horrible photos, I don't look all that good in them.

Go-Fund-Me : https://www.gofundme.com/f/stevehafner

Facebook Fundraiser :  https://www.facebook.com/donate/2160338577353193/

Here we go with the Copy and pasted story from my Go-Fund-Me:



     "Last fall I hurt my back (thought it was from lifting a mini frig), and was treating it as directed by a physician using NASID (Motrin, Ibuprophen, etc.) thru August and September. End of September I’m not getting any better and after 3 ER visits, 1 Urgent Care visit and god knows how many visits to my primary care provider I hit the ER one last time and they caught me in a stage 4 kidney failure. At this time they thought it was due to the NSAID’s over time. Early October, I was released as my kidneys were getting somewhat better.  Unfortunately my back wasn’t; even after 2 lumbar steroid epidural injections. I was sent home and as I prepared for a family vacation I broke 2 ribs bending over from my office chair. The back doctor referred me to an endocrinologist finally after the pain management and back doctor couldn’t figure out what was happening (this was now early January of this year).

The Endocrinologist finds multiple deficiencies which included but aren’t limited to severe osteoporosis (I’m 42 and male so this is really odd) and low vitamin D, low Testosterone, severely anemic and what looks like possible Celiacs-Sprew disease (gluten intolerance) at this time I start on the meds he prescribes and he referred me to an oncologist.  The oncologist did more blood work and at the time I didn’t show anything else was wrong. They had performed by this time MRI’s on whole body on my back on my head to ensure no pituitary gland tumor, ultrasounds on my thyroid and parathyroid to ensure no issues with them, and CAT scans as well. Everything started seeming to get better, even my back was better at times . What was even better ... I was able to walk without a cane.


Mid-March of this year (2018) things start going downhill, and my upper body/chest is in pain from strain trying to compensate me walking with the bad back. It had gotten to the point that I couldn’t walk unaided, couldn’t catch a breath because of the chest pain and essentially became bed ridden early to mid April. I now use a walker to get around my bedroom and to the bathroom, which is 10 to 15 feet away from the foot of my bed, takes me a good 30 minutes at this point.
So I had a follow up on April 30th with the endocrinologist and he pretty much called it from the blood work and labs but wanted to be sure so sent me back to the oncologist.  At that visit, the oncologist wanted to do a bone marrow test and because its an ordeal and I mean excruciating painful ordeal for me to get to a doctor at all I opted to do it then and there. Follow up appointment is where it was confirmed from the bone marrow test that I indeed have Multiple Myeloma cancer and it is also possibly the root cause of my back pain as well. After this I had a PET scan which confirmed they see the cancer in my back.  My treatment starts tomorrow with Chemotherapy, Steroids, Radiation and then calcium infusions once a month. These are to last 4-6 months. If all that goes as planned, they will then refer me to a larger cancer center such as Duke, Emory or MUSC to do a bone marrow transplant/refresh. This from what I understand is done with my own existing marrow being extracted, cleaned and then replanted. I’m assuming its some sort of steam cell therapy deal.   I don’t know what stage it is, I asked yesterday and they said it’s more like a chronic cancer because it starts in our plasma which circulates everywhere throughout your body so there is no way to isolate it.  During one of my trips to my oncologist to have chemo treatment, I began to sweat profusely and the oncologist was concerned with the amount of pain I was experiencing and opted to send me to the hospital to be admitted to get the pain under control. This was 3 weeks ago and I have had some setbacks, which included being in the ICU due to breathing difficulties. I am back on the oncology floor hoping I can go home soon.     I don’t know anything more about the prognosis yet, life expectancy, etc. I just don’t know.   I’m still in shock from it all. I partially can’t believe it is what I have. One chemo prescription pill is $20,000 - per dose cycle. I may need 4 – 6 dose cycles.   The doctors are upbeat and my wife has been a God send as she is here each morning before work and after work."  ~ Steve H.

The following update(s), was posted by my wife 13 months ago :



"I can't thank everyone enough for all the prayers for Steve Hafner, today was a huge step for him, he was able to get up and sit in the recliner for several hours til he had to go for radiation. You are doing such an amazing job babe i'm so proud of you, you have shown just how strong you really are and i couldn't be more proud! Please keep the prayers coming we still have a long road ahead"  ~ Emily H. 
"Just to give an update on Steve's progress. He is done with radiation!!!! Finally. Now to keep going on with the chemotherapy. He has been working with physical therapy everyday, he did 260 steps today way to go babe! We are working on getting him off the pain pump so he can then go to a rehab facility to help strengthen his muscles up as he's been in the hospital for a month now. I will update again as things progress. Thank you to everyone who has taken a minute to donate to us we can't thank everyone enough xoxo"  ~ Emily H.


"We are now going on 7 weeks in the hospital. The medical bills just keep pouring in. We are almost set to go into rehab at a facility not to far away from the hospital. Physical and Occupational Therapy will work with Steve everyday in hopes they can transition him to going home. We are very hopeful that with the help of therapy he will be well on his way to recovering. We can't thank everyone enough for the love and support we have gotten . People have gone above and beyond for us. Love you all!"  ~ Emily H. 


"So we were discharged from the hospital Friday to go to the rehab facility. We left about 2:30 on a Friday and got to the facility around 3. From the moment we stepped foot in this place everything went to h*ll. That night came around and my husband had been asking for pain meds. Hour after hour went by. Saturday morning I find out he still hasn't had pain meds. We are now going on 21 hours without pain meds. As most of you can imagine I FLIPPED out in the nurses. I was shaking and crying as I was so upset.  

My husband and I have been together nearly 20 years and never has he seen me like this! He finally got his pain meds at this point hes already going through The next night comes around , we have the same issue for some reason they cant ter him his pain meds on schedule!! I'm to the point of busting him out. He had his appointment for labs/follow up/and chemo treatment Monday. Talked with the Dr. and she was in disbelief. At this point our best option was to take him home and get him out of that h*ll hole. So now we are home and I'm controlling his meds making sure hes getting them on time as he should be. I'll be taking 2 weeks off from work to be with him and help him as he needs. Home health is in process of getting set up to come in and help out with physical/occupational therapy. Anything has to be better than what he was getting or in this case what he wasn't getting. "  ~ Emily H. 

7 months ago, I started to post again on my own. 


"I'd like to take this time to post another update. I've been very busy as of late since my last updates. 

We are now approaching Christmas and I've been fortunate to recover as much as i have. I've been able to return to work in a limited manner somewhat, but the bills keep rolling in, so any help here is greatly appreciated and most definitely needed, especially with the upcoming 1st of the year roll over and my insurance starts all over again. 

I've had 2 bone marrow biopsies since the last update. I spent 2 months at in home care nurses and physical therapy which helped me considerably and at the end of October i was able to start working in a limited manner again. Thank goodness for my co-workers and those folks. they are super understanding and take care of me while im there, ensuring i don't over do it. I tend to get weak fast and suffer from a lot of fatigue quickly, more quickly than i want to admit to be honest. The first bone marrow biopsy stated my bone marrow levels of myeloma went from 90% to 65% and is not enough to move forward with the bone marrow transplant. 

We went to MUSC in Charleston to have our first consultation with the transplant team, and they stated that 65% is not enough. we need more so they changed my chemo regimen to 2 different things. One is called Cytoxen and the other is velcaid. They together are doing good as my 2nd bone marrow biopsy showed as while they tire me out and make me very sick, they brought my myeloma levels down from 65% to 20% roughly. We then had another meeting last week in Charleston at MUSC. My doctor there stated i'm still not low enough and as such he wants me to go onto a third regimen of chemo. this chemo is going to be the strongest yet, and i'm scheduled to start it on Dec. 27th. This is a full inpatient admittance to the hospital in Lexington to take the first dose, so an overnight stay. My anxiety is already high after my last experience in the hospital a few months ago, the last thing i want is to be in the hospital for another period of time at all. Again, more money will be charged and more will spend. I also found out that because of chemo, my teeth have gotten worse. I had just completed 15k of work on my teeth when i got sick with the cancer, and finally had them fine, but now i have another 5k in stuff i need done, including another root canal before i can even go down to Charleston for the bone marrow transplant. the hits just keep coming financially, but i'm still alive, i'm ambulatory, and i'm very very VERY thankful for that, and for all of you who have supported me during this very difficult time of my life. All i can say is if you would please continue to support me, share my go fund me, and help me any way you can, prayers, or other wise, it is greatly appreciated. God knows i can use any help i can get, and it is only through his grace and love will i be able to make it through this. Thank you all for your time in reading this and i'll try to not keep the updates so far apart so its not so much too read next time. Thanks."  ~Steve H. 

"Here's our 2018 Christmas Photo. As you can tell, my back is pretty jacked up. I've learned from the last PET scan that at this time i have a broken rib, and TWO broken vertebrates in my back. the l5 and l7 are fractured as well here in this photo. Im not sure what else is because my nurse practitioner is supposed to call me back soon and has yet to do so. Anyways here's the most current photo i think i have of myself and my primary caregiver, and ultimate awesome loving wife, Emily. Without her i'd be so lost, and i'm more thankful than i can ever express that i have her in my life not just to take care of me but for everything."



"Well, this past Thursday i had to be admitted to the hospital here in Lexington to change up my chemo routine. It was for a 10 hour chemo drip and then to be observed for the remainder of my night in the hospital. I had some anxiety about returning to the hospital after the last time i was there, but overall this visit went just as was planned. In fact it was nice to see many folks that cared for me before, and they were all very kind and glad to see me, which overall made me fell good that they thought i was doing so well. 

Anyways, the Chemo went without much of a hitch although i am experiencing some insomnia and a bit of nausea from time to time. I will next wait for the phone call from my normal chemo nurse to schedule my next chemo appointment as an outpatient as before. from what i understand this should take 5-6 hours to administer per drip per week. I believe it will be on next Thursday that this starts. 

Thank you all for any donations, prayers, or kind thoughts, as I can use them all desperately."     ~ Steve H.

"I've now had 3 treatment of my new chemo drip, and I've also started to take as of yesterday a new chemo pill daily. It is a bit early so far to see how it is effecting me, over the long term with the new pill but as for the Drip it pretty much wipes me out after 2 -3 days of having the infusion. so for example i get the IV drip every Thursday and that takes 6 hours or so. After i have it I'm pretty much wired for sound due to the steroids i think. I have a hard time sleeping for 2 to 3 days, and then by Monday i start to crash, and crash hard. I will have issues keeping my self awake sitting at my desk at work upright in my couch or chair at home, forget it, if i'm even in the slightest bit possibly comfortable i'm going to fall asleep. then slowly it starts to go away, right about Wednesday night, i'm back to normal, just in time for the next infusion on Thursday morning. Now adding the new chemo pill to that, who knows what will happen. I have only 22 more days of pills to take at this time. Oh and did i mention each prescription of this pill chemo is 25,000.00 before insurance and any discounts i can get. So yea, its pricey. Anyways, i'm going to go now, and i'll keep y'all updated keep the prayers and help coming, Its a new year which means all new deductibles to meet and more and more bills :( . God bless you all."  ~ Steve H.

"The latest news is that i am scheduled to go to Charleston on the 24th of this month, for 4 days. This is to harvest my stem cells. The Stem Cell harvest can take anywhere from 1-4 days. they are also going to put in a port for my chest for administering and drawing blood and all that at that time. The other side of things is no one told us that i could go sterile, and most likely will, by the end of the chemo and end of the bone marrow transplant. This is very saddening to us as we want our own children. at this point I'm taking steps to see if my semen is currently viable for banking before the bone marrow transplant, which has also been scheduled for march 13th. If all is well, my semen will be viable and healthy still, i will supply a bankable specimen come the week of the 6-12th. time will tell. That's where we are right now. the anxiety and nervousness is building and a lot is going on, bills are adding up, including a 7k hotel bill that will be for our time in Charleston. thank god for you all, and thank god for my family. without all of them i'd be lost now." ~ Steve H.


5 Months ago roughly :


"Stardate February 24th, 2019; roughly 9: 40pm-ish. 

tonight is the calm before the storm. I go tomorrow morning at 645 to MUSC for a Hickman Catheter to be inserted and installed in my chest . at which time i will then be moved to start the harvest of my stem cells. the goal is to harvest 12000 stem cells or so (maybe more maybe a little less). Once they have gotten their fill of stem cells, they will go ahead and put them on ice or about 2 weeks. I will get to go home until the 13th of March. this of course is all pendant upon them getting enough stem cells in the next 3 days or so . You see i'm down here in Charleston from now until Wednesday at the latest roughly. if they finish up earlier, they will send me home earlier. 
I've had a ton of support from you all. and I've had a ton of support from my wife's family and for this i will forever be indebted, thankful, and ever so lucky. If it was not for my in-laws, i doubt much of this could happen, or would happen thus far. Every bit of help you guys, my in laws, or anyone else will feel to give helps me exponentially. most folks have no idea, even if its non-monetary, and just a gesture of faith, prayer, or kind words, it helps so much more than i can put into words. Please keep all of those coming, as i will be able to reciprocate them to others who need the help in their lives as well. Thank you all again. From the bottom of my heart, thank you." ~ Steve H

4 Months ago roughly:


"So, Today is the calm before the storm.

Tomorrow 3/13/19 is the day that I go to start my Bone Marrow Transplant. I will begin in tomorrow morning at MUSC and have a really high level chemo dose to basically kill my immune system. Then Friday, 3/15 i'll be receiving my stem cells back, to jump start my Immune System.

They say the first 14 days are the most critical, and if i can make it through those without a fever, and without much difficulty I should be good to go. The entire process should take about 30 days. To say im not nervous would be a lie. Hopefully this will go as according to plan as it can, and hopefully it will work out positively in the long run in putting my cancer to remission or getting me cancer free. Either would be a godsend. Thank you all for your support of me in the past, your prayers, and any support and prayers you offer me in the future. I still have my go-fund me, and i have a paypal (GamecockOperator @ gmail dot com as a gift) you can gift if need be. The bills are becoming astronomic.

thanks again, God bless." ~ Steve H.

3 Months ago roughly:


"At this time I have returned home from my bone marrow transplant. I am quite happy to be home as you might imagine. So lets see, since march 15th, I've been in Charleston SC for the Bone marrow Transplant. First thing they did was have me get some shots, one of which was nulasta. that stuff hurt. like a ton. it made my bones produce more white cells they say, but it made it feel like my bones were growing from the inside out and it was excruciating pain. thank god it only lasted about 4 days. During that, they zapped me with a heavy dose of chemo, called melphalan. This was the chemo that was heavy duty. It made me very sick, and fatigued, and also made me loose most of my hair, which has yet to grow back as well. two days after the melphalan, i was given back my stem cells that were taken from me a week earlier. this process was pretty simple, and i just sat there with a drip going of the iv of my own stem cells. The next week i caught a bit of Pneumonia, which made me spike a slight fever. They had told me there at the BMT clinic that if i had a fever of anything over 100.4 i needed to go to the ER immediately, so with the pneumonia i did spike that, and thus had to be admitted to the hospital there at MUSC. I was admitted for a week. During that week i was able to be monitored and on antibiotics so it kept me from getting worse, and more importantly it got me better. After the week, they released me out to the hotel we were staying at again. 

The hotel we had rented was a residence inn, it was in west Ashley, so it was really close to the hospital. We were lucky to have had it, and it was a 2 bedroom suite, so my father in law and wife and i were able to stay there comfortably but the overall bill was darn near 7000.00 for the month, plus the week before when we were down to donate the stem cells. Nothing is cheap, and compared to the treatments that was a small price to pay and luckily the fund raisers are helping some with that, even though they cant cover it fully. So after i was released back to the hotel, we spent 2-3 weeks going in every day, being checked out, and having things like my magnesium and potassium levels filled because they were not high enough. Luckily those things were easy fix's with the IV drip, and then last Thursday a week ago they finally said i could go home. 

I have to do checkups for the remaining month of April. This means i have to drive down to Charleston so far once a week. I went this past Monday, and luckily all checked out. my labs were very good they said, and while they are concerned with my nausea issues which have been persistent for the past two weeks, they are overall pleased. Next week i have to go back on Wednesday for another checkup. Luckily for me a good friend is going to drive me as my wife has to work and my in-laws have all gone home. Anyways, that's where we are with things right now." ~ Steve H.

Hey guys, i figured i'd give yall an update. These past few weeks have been a roller coaster ride for me of emotions. June 23, 2019 was my 100 day anniversary since i began my bone marrow transplant. As many of you will recall i had to stay in a hotel for a month in Charleston (including the week that i was admitted for pneumonia). The bone marrow transplant went well overall, minus the Pneumonia of course, but they were able to take care of me and get me over that. At 31 days they released me from having to be local, which is great, because after having to spend 7400.00 for the hotel alone we were getting pretty tapped out cash wise, and we returned home to Lexington. Once in
Lexington i had to stay out of work for two to three weeks, before i returned. Just because i was soo weak. I've been in and out of work since then, but luckily my work has been very understanding and helpful with this and they've let me work from home. So fast forward to my 100 day checkup which took place 4 days after the actual 100th day. They did my blood work and what not and thank God, i had a partial response! My numbers were going down fast, and were way low (which is a very good thing) basically the way its done is this:

Myeloma response criteria is: 
- complete response (no myeloma detected on labs/ blood work/ bone marrow) 
- very good partial response (90% of the myeloma is gone) 
- partial response (50-89% of the myeloma is gone) 
- stable disease ( numbers do not meet criteria for partial response or progressive disease) 
- progressive disease (numbers are increasing). 

The IMWG is who made this criteria (International Myeloma Working Group) 

The good news also is that not only am I in partial Response, but my numbers may continue to go down as i continue on my maintenance program of a chemo drug. so i'm very happy with those results thus far. So much so that my wife planned and executed a very nice 100 day celebration party for me on the 29th of June. It was a great time, and i was glad to see many of you my friends, show up to celebrate with me. However, this past weekend i got some very bad and sad news.

You see when i was diagnosed in May of 2018, i found out that a high schoolmate of mine named Denise was also diagnosed with the very same cancer i was, Multiple Myeloma. As i fought my battle she fought hers, and we talked via Facebook fairly often about how each of our battles were going. Around January she told me that she was in remission, and was able to be there solely by having underwent chemo therapy and radiation. I was envious as i was ramping up to go to Charleston, for my BMT(bone marrow transplant). I had been undergoing Chemo treatment for 3/4th a year by this time, and had LONG been done with my radiation therapy. I had had some issues with the chemo, in fact they had to change my type three times before it really started to make a dent to drop my counts and get me ready for the BMT. You can imagine how anxious i was at this time waiting for the date of the BMT to come, as that was a real big event, and i was worried about the side effects. And finding out that Denise had been lucky enough to get into remission without having to do a Bone Marrow Transplant made me very envious/jealous.

Nevertheless, Multiple Myeloma effects each person differently. Denise had a lot of other issues than i had, from the Cancer. where i was broken vertebrae's left and right, and breaking ribs, and a broken sternum, and things like that, Denise not only had broken bones but she also had became partially paralyzed as well i was told. So while i was healing and able to move, and even though Denise was in remission, she couldn't return to her normal life. When i had came out of my BMT and returned home Denise was still being treated and i was healing up. Then about two or so weeks ago Denise told me that she's been having more difficulties, and that she's stopped having any reaction her chemo treatments and her radiation treatments. But the worst part of it, was the doctors told her she had only about 8 or so weeks left to live. This really was a sad thing to hear, and i continued to try to be brave for her by being positive when we talked, and also i continued to pray more for her.

Well this past Sunday sadly Denise lost her battle with Multiple Myeloma Cancer. I cannot believe she's gone so fast, and i cannot believe that she went so quickly compared to what the doctors gave her. To know that I'm fighting the same fight, no matter how different it effects us as individuals, really has been messing with me since she passed last Sunday. I am comforted knowing she is in a better place with her savior Jesus Christ, but at the same time i know a great person has left this world just a bit dimmer, and a bit more sadder. The reality is, it could have just as easily have been me, in her shoes, and that too truly bothers me. I will continue to try to be as positive as i can, and I will continue to try to fight this evil disease as much as i can, but the fact remains that I have it, and until it's gone that is all i can do, Fight it.

I truly appreciate all of my support system, family, friends, and Pastor, without them i'd be lost. Also, I couldn't have made it this far without you guys having supported me as much as you have in the past, and currently with your prayers, positive vibes, and the donations you all have donated to me. Some folks have asked how they can help me, and how to donate to me, and while I have this GoFundMe, I also can still accept donations at my Paypal as gift. My Email for that is GamecockOperator @gmail.com (without the space. I also can accept donations from my Facebook fundraiser page as well. If you want to use those routes, please feel free and hopefully i'm not violating any gofundme rules by mentioning them. Mostly, please continue with your positive vibes, positive thoughts, and Prayers for me. Without those, I wouldn't be so successful with this battle as i have been thus far. Thank you all again. and please if you don't mind send up a little prayer for my friend Denise and her family, may she rest in peace. She's finally without pain now, and truly without this evil Cancer.

p.s. sorry for the wall of text." ~ Steve H.




Thursday, March 30, 2017

The first quarter of 2017.... the good, the bad,.... we'll leave off the ugly.

Well, where to begin.  2017 seemed like it was going to be starting out as a good year.  Seems things often look like they would be good but in the end turn out to not be so... such has the first three full months of this year been to me.

Christmas came and went.  My in-law surprised us with a gift of epic proportion, that of a trip to Hawaii.  She stated we would go in the end of this coming year, so that is a big awesome gift that we can look forward to.  Many things go along with a gift of this magnatude, the least of which is simply figuring out how to pay for it even though the trips airfare and lodging is already covered.  Im extremely excited about it though. I hope that I can get everything done, and save enough to make the trip the most enjoyable of my life.  I know i for one am more thankful than i can explain or express for this opportunity.

Over the month of December, I had severe pain in my sinuses and teeth.  the way it moved around from one side to the other, and lower jaw, to upper jaw, on opposite sides.. and even into excruciating ear pain, made me believe that i had severe infections in my sinuses. My family physician prescribed me amoxicillin and sent me on my way. This seemed to serve as a fix, and got me over Christmas and thru the new year.   Another thing that I found out was that my Mother had once again left my grandfather alone for Christmas.  Due to the family strains and lack of relations there was little i could do regardless of how fucked up the thing is when she uses "i was too stressed out" and "had to get away"  as her excuses.

Towards the end of December, what was once a very close friend that had for whatever reason stepped away from friendship contacted me thru facebook.  He stated his mom had passed away, and knew i'd want to know as my mother and his were also once very close.  I relayed the message to my mother, and while she nor i attended the funereal, we both were quite saddened for his loss.   Life, is very fleeting, and sadly fragile.

During the last week of December my father called me.  He told me he had had enough, and was finally going to check himself into an alcohol rehab facility.  I was hopeful, and thankful that he was taking it in his own hands to get things taken care of.  Not one week in, and i get a call stating the worse.  He had ben admitted to ICU, and had multiple issues.  It was touch-n-go for a while, but he slowly was making a recovery.  He was intubated and on a respirator for over 2 weeks.   During this time, i myself had many issues going on.  Besides the fact i was entering into my 5th class in graduate school, I had a severe pain in my abdomen.

Fearing this abdominal pain could be appendicitis or worse, i underwent many tests.  the CT Scan found that i had an inflamed Duodenum to the point of Duodenitis, which is very similar to Gastritis.  It basically is a bacterial infection of the small intestine, right where it meets your stomach.  Ol' Ironsides had a chink in her plate, and i paid in pain so grand i would wish it on no one.  The only thing ive ever felt that was that strong in the past was my gall bladder pain before it was removed. They prescribed me a very potent antibiotic, Cipro, which is used to treat anthrax, and the bubonic plague among other things.   Well after that round, I felt like i should be good to go with no other issues!!! Sadly that was not to be.  As my father gained strength and finally was off the respirator, and then out of ICU, and finally in the end, returned home life got back to normal... so I thought.

I occasionally still had tooth / sinus pain that was unexplainable.  I decided to bite the bullet so to speak, and go see a dentist in the last week of January.  As not terribly unexpected, i had a lot wrong with my teeth.  And we scheduled an appointment to have half of it corrected on Feb 17th.  Well not all goes as planned ever, as we all know, and then as i get ready to go to the dentist for sedation work, on February 7, 2017 my entire world came crashing down. (much more than it had already had)

My Grandfather, my best friend, of 41 + years, passed away.  His name is John Allen Muntz, and he was born in Reading Pennsylvania on February 9, 1923, and lived through the great depression, World War II; where he served as an armed Guardsman and was even torpedo'ed once, thru the 50's, into the 70's when he had a massive heart attack, and then my birth.  He practically raised me, and was the one and only pillar of my family that was always there with advice, support or any form of help he could offer.(regardless of if he should) In many ways, more than not even, i am the person i am today because of him.   I am thankful for that in more ways than ill ever be able to express or say.  This is probably the only time i really have spoken about his passing much, as it is too much for me to bear.  Even now, a month and 3/4 later.  When he died, life as i knew it essentially did too.  (Not going to mention some of the "Ugly" that i alluded to leaving out in the title, as I'm still going to leave it out, but know that there was a proverbial fuckton of shit on my shoulders already)  So i attended the funeral, and tried to make things go as smoothly as possible with all of my estranged family.  I was lucky enough to have been able to see my grandfathers nephew Eric there, as he drove in from Ohio.  Eric, was always well spoken of by my grandfather and i believe him to be one of his favorite nephews.  I'll never forget how much his showing up meant to me, and would have meant to my grandfather.  of that i am very sure.

I Pretty much at that time stopped work in all earnest regarding grad school. I still had half a class to go, but nothing mattered. the stress of life caught up to me and i gave up.  Somehow, thru the grace of god, i made it, and have snapped out of the "funk" for the most part.  I believe a lot of it has to do with the fact that i finished that class, and didnt take a second this second half the semester.  I dont know how i did it either, but i still managed a B in the course as a final grade.

Now, sitting here at 1030pm on the eve of April, I had had my second of what was supposed to have been 2 total major dentist appointments under sedation.  I say what was supposed to have been, as of course, i've ran into more complications.

The first visit, i had to have a wisdom tooth cut out, and then three root canals done as well as deep cleaning and other things im sure.  The total for that visit was going to be very high.  Just as was the second visit.  So i was able to put in for a credit system to pay for it.  Well let me tell you, I've now financed enough dental work to own a nice Kia, not some stripped down one, but im talking a Sorrento with all the bells and whistles.  Anyways, the first visit was spectacular, and i felt like a million bucks until the Saturday following.  This visit was the one where they cut my wisdom tooth out.  Well the fun here started then.  I evidentially suffered from what is called Dry Socket.  So i was in intensive a all week until i went back for the post op surgery visit.  Once i had that visit he stuffed the pocket with a clove tasting solution and gauze gave me good pain meds as (hydrocodone does nothing for me but make me tired) i am finicky about my pain meds, and then i went on my way.  Well as the month progressed from February thru mid march, i started getting a lot of pain again.  Turns out the friday before my second operation system was to happen, my back tooth that he had filled fell off.. so the tooth is there but the resin is gone.  that was a no go, so he came in on his day off and fixed it for me.  I was good to go again, until 11pm that night when it fell out again.  I ignored it, managed pain with advil and tylenol, and made it to this mornings sedation treatment.


Todays treatment went well, at first.  I do not have much memory of it all, but so far, what i've been told and recall is, 1.) i woke up in the middle of it all. Excruciating pain, while being drilled on.  Not fun.  2.) They had to put me back to sleep, but yet i remember the drilling and the needles. 3.) they had to do a 4th root canal on the tooth on my right. 4.) I think i have 2 caps now permanently on my teeth, may have a 3rd and fourth yet to go.  5.) i have a follow up visit for next thursday as a Post-Op visit. 6.) i have evidentially another tooth to be removed now because the one whose pieces kept falling off that he resined is too far gone i fear.

I have no idea how im going to pay for the rest of the services at this point as the  stuff ive had done thus far even with state insurance (which i might add only covers 1000.00 per year dentally) now has left me with a Dental bill of well over 13k.  I will hopefully keep folks updated here as the saga continues, but at this point its 1045 am and the tylenol pm and other meds are starting to kick in.

To those i love, know i love you more than i can express, and am more thankful for you than you'll ever know.  To those i've wronged, i dont mean to purposefully wrong you, so please accept any apology i can give, and to those who are enemies, well, nothing i can do or say will help you so i will keep you in my prayers, because hating me will only hurt you in the end.

I will start grad school again in may, provided i can find the funds again.  The dental bills will make it hard im sure.  I hope things are better for us all now, and in the future than in the past. I sure hope work is good, and eventually i'll get the raise and titile i deserve as opposed to being called what i am and paid less than i deserve.  God knows work alone has been enough stress to kill a persons outlook, but things will get better i pray. Since our Go-Live with Cerner was a complete failure, there is no way to go but up now from here.

Heres  to hoping that the 2nd quarter in 2017 is much better than the first.  A sign of that hope is my friend having his first child, and another friend buying a smoking hot new camaro, and then yet another friend is nearing the end of his pregnancy with his wife of his second, a daughter he will cherish foever.. You are all blessed, may i too, one day, find such blessings.  As for my friends and family going thru things, Divorces, job changes, or anything else, know those are just temporary states, and everything is fluid... im with you, just call or text if you are in need.  Much love.

Tuesday, December 8, 2015

Reflections from 2015.

I am Thankful.

In today's world, we often take for granted many things that we have as being "expected" or "routine" or "normal".  Lately, after visiting family, and friends over the past few weeks, I have been reflecting upon myself, my life, and my situation.

For all the flaws i have, both in my life and in my "world" I have come to the glaring conclusion that while nothing is perfect, I am very thankful.

I woke this morning, got dressed, drove to work. Had breakfast of my choosing, worked, had lunch of my choosing, and work some more.  Then tonight, as i end my work day, I will drive home, and complain about the traffic, to cook a meal, in my home, and with my wife and cat spend the remaining part of the day reading, watching television, and enjoying various other hobbies.  I am thankful.

I have more than many can ever dream of.  I have food on demand, climate control, the ability to wear different clothing of my choosing, the ability to go where i wish when i wish, for the most part, a home that i can call my own, regardless of how much i may owe the bank, and automobiles, again regardless of what I owe, that i can call my own. I have hobbies, and have had the drive and desire to educate myself, on my own, figuring out how to pay for things, to better my situation however i may.  Many do not have even half of what i have, material wise, drive, financially, or physically, and for that I am very thankful.

This world, even with its flaws, has been kind to me.  I Have my health, which is the very most important thing, next to having those that love me for who I am, no matter my flaws, looks, or idiocy.  These too, have made me realize, I am Thankful.

I may not have everything, but I surely have more than enough, and that is not including the materialistic things.  In life people are what matters.  Those who are in your life, that love you, for better or worse, are the ones who matter.  We often overlook that, in life's daily tasks, especially in the "first world"  where we're more geared for materialistic wants and desires.  I know the love of family, and that of children who light up every time they see you, even though you are not their parent, and that is nothing less than amazing.  I have the love of friends, some lifelong, some recent, and I pray that i can be a good friend to them, and they to me, and for those things, I am very Thankful.

I challenge each of you to look at your life. Take stock of the material and immaterial items, and realize how blessed you are.  You may not have a dime to your name, but I am willing to bet, you have something and more than not, someone to be thankful for.   We all are born doing one thing, dying.  You never know when, how, or why, but you will surely die one day.  reflect upon your life, your blessings, your trials, and your hopes and aspirations.  Do what you can to make them happen, but do it with a positive attitude, and a forgiving heart.  Know that the cloaked man awaits you, give more than you receive, and you will surely have a life that is one to be most thankful for.

I'm not quite sure why i've been so reflective upon my life lately, but it has been an interesting few weeks/months.  As hard as it is to do, for every negative thing you experience, know there is a lesson to be learned, and for that, a reason to be thankful.  For every positive thing, one must reflect upon those moments as well, and be thankful for them even more so, lest we take the good for granted.  In this holiday season, no matter your race, religion, political background, reflect upon yourself, and know you matter to someone, and have much to be thankful for, even if it is simply just waking up one more day. 

Tuesday, September 8, 2015

Not a clue...

 As I approach my 40th year on this planet I cannot help but to reflect upon my life and my own mortality. In doing so I acknowledge that I have no kids of my own to base this thought upon, however that will not keep me from making this observation :

My parents had absolutely no clue what to do in life at any given time.

This is in regards to both their own lives and in raising a child or multiple. It occurs to me that I, like they, have done the best with what they had that they could. That is to say They made the best decisions they could with the information and tools they had at the time and at their disposal. I'm quite sure they were just as terrified and worried about any and every life decision they made that say you and I are currently. Yes the circumstances that you and I have may be different but that does not mean that the general situation and conditions were not. It is an interesting thought to ponder life and compare loosely what they did to what I think I would have done at one situation or another. Life is funny that way I suppose.

I don't know where I was generally going with this but there it is. Make of it what you may. Especially those of you with kids. Imagine your parents making the decisions that you make about your kids except you were the child.